4-9-10 Community E-Newsletter/Call

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Hi and thanks for your support of this incredible movement through till the spring-like flowering of the world's first ever, unbiased, free license and dynamic medical/health knowledge base.

The "Democratization of Healthcare Information" project seeks to further the development of our free Medical Encyclopedia that has been a “Wikipedia Model” for health information. Our plans go beyond the public wiki approach and include a physican verifiable mechanism that will offer an accurate, non-partisan and free source of information that users can trust!

This article serves as E-Newsletter as well as proposed agenda topics for today's OurMed Community telephone call. As we go forward with a newly signed contract with Blueliner, we are looking to organize the Content Committee in more detail. In constency with our mission, our non-profit community approach seeks your unbiased contributions to medicine and consumer knowledge on healthcare.

Time: Friday (Today!) 2 - 2:45pm EST
Passcode: 634011#

If you would like to opt out of these emails, please let me know. Thank you for your continued interest in the OurMed initiative--we couldn't make this happen without your participation and are grateful for you pitching in!

Greg Miller, Executive Director at OurMed.Org

(212) 740-1850
Watch our OurMed YouTube Video:http://www.youtube.com/watch?v=zqgYfFxEkLk
 




Contents

NIH Should Disclose Financial Conflicts: Watchdog

Source: http://www.pharmalot.com/2010/03/nih-should-disclose-financial-conflicts-watchdog/

By Ed Silverman // March 16th, 2010 // 7:34 am

In response to the ongoing controversy over financial conflicts of interest university and med schools researchers funded by the National Institutes of Health, the Project On Government Oversight is urging NIH director Francis Collins to disclose financial arrangements of its researchers in a public database.

The issue is also being pursued by US Senator Chuck Grassley, who is probing researchers who accept funding from the NIH and pharma, as well as instances where their universities have failed to monitor or report payments. According to current NIH regulations, payments above $10,000 should be reported (see background here).

In a March 11 letter, POGO noted that financial arrangements are currently reported confidentially to a researcher’s institution, but “the confidentiality of the reports has opened the door to abuses involving obvious conflicts of interest…The lack of public disclosure – and the large amounts of money at stake – almost guarantees that some grantees will cheat and that some of them will get away with it.”

In response to a proposed NIH rule concerning financial disclose, POGO notes few comments support the effort, but the watchdog group also pointed out that Collins told the New England Journal of Medicine last fall that “I personally am in favor of the idea that sunshine is the best disinfectant. The idea of having a public database where all investigators disclose what kinds of financial arrangement they have with outside organization is a good thing.”



Columbia University Spring BioTech Series

OurMed's director, Greg Miller, presented OurMed to Columbia University's BioTech students on Wednesday. About half of the 50 students who attended were in the Bio-Tech graduate program destined to Med School and the other half were set to be scientists.

The 2 hour seminar was a discovery and discussion format. In the first hour, students were broken up into six teams and researched what they liked about the best healthcare sites under the task that they would use these elements to create a single worldwide healthcare website. Through their findings we concluded that the best health sites were well designed, organized and complete with accurate, credible healthcare information.

Discussion examined the monetization models of various sites and the effects of bias on information. In the second half, the OurMed project presented, underscoring the advantages of non-profit, unbiased authority of easily accessed credible information. Freely licenced content was key in the understanding of how the free content culture linked with open source licensing to bring crowd sourcing as a viable method of presenting information. OurMed's Phase 2 project plans and designs were revealed with physician authentification tools to ensure credibility of information.


Congratulations Diane!

Our Diane Joiner, formerly of WebMD and current member of OurMed's Content Committee has earned OurMed's first Barn Star award. Stephen Press, chair of the content committee has implemented Wikipedia's method for awarding contributor's efforts. Diane has contributed ov Symper twenty medical articles under the OurMed Symbiosis Project.


OurMed thanks Richard Knipel for his five-part plan to enhance Ourmed's content by developing positive symbiotic relationships with existing open content communities.

  • 1. Ensure our MediaWiki and WYSIWYG configuration is compatible with Wikipedia
  • 2. Import high quality health and medical topics articles from Medpedia.com: Featured articles and Good articles.


Building content – What to write about?

Changes or additions can be made easily with our WYSYWIG editor (what you see is what you get), making it much easier than Wikipedia and cutting the volume ramp up rate to the new site significantly faster.

At times posting new material may be difficult to give attributions for so it may be easier to publish previously published work
Alternatively, you can choose content from one of the many free content ("copy left") sites such as much of the content on:

1. Medpedia.com

2. NIH's PubMedCentral.gov from the National Library of Medicine

3. Wikipedia.org

4. GanFyd.org (original medical wiki site that says Medpedia copied them and boasts 2000 site visitors per day)

5. PubMed.org

6. Medline.org

7. Open.Michigan.edu 8. Others?


Posting on OurMed.Org

In addition to the Symbiosis Project, OurMed offers writers of original work to publish a vast range of medical topics. Under the three pillar approach of 1) Being Referenced 2) Being Bold and 3) Being Polite, OurMed strives to be a forum through which multiple health and medical issues are presented and debated.

To write, you must have a free OurMed account. You can write about nearly anything, just keep your comments about new ideas,health and medicine.--It's really important that OurMed gets off the ground using a communities collaborative approach to building it, just as Wikipedia did nine years ago.

We are furthering our editorial policies to include a Style Guide.  Feel free to suggest ideas to make this a global "go-to" resource for all healthcare needs fit for any patient or healthcare professional.

Please click on this link to make a small post about whatever's on your mind. You can suggest articles, design or features that you'd like to see on the site. http://ourmed.org/index.php/New_Ideas_for_Site

Most Active Authors in past month have been:

Most Active Authors

  1. Savealife
  2. D Joiner
  3. Gmiller
  4. Vnavarro
  5. Pharos
  6. T1
  7. Elisep

OurMed's Technology Update

OurMed's web design team lead by Vincent Navarro has been holding several intense in person meetings to infuse the OurMed community's input into a world class website, complete with a new look and expanded features--Not an easy task!

Several "wireframes" have been considered to be used with various configurations including a liquid design, two and three column layout. Key elements have been tested in various spots of the homepage to address their importance. Featured articles, A list of collaborative wiki categories, donate, latest posts are the main elements of the homepage.

The new design will be a grey-blue look, with sleek pictures and simple to navigate mechanisms. The latest technologies will be implemented to ensure web2.0 interactivity.



Announcing OurMed's MedTool Project!

As we develop OurMed's Phase 2 site, we want to announce a competition to inspire our content contributors to come up with the most useful healthcare diagnostic tools from around the world.

Submissions will eventually be open-sourced and written in Joomla so that it will "plug-in" to our new site as well as be available to all around the world in a copy-left offering. To contribute, a contestant need not be tech savy but only be familiar with common health and medical needs. Will it be a simple Body-Mass calculator, Symptom Disease matcher, Diabetic Insulin calculator--the list may go on and one but we want the most popular, best and easiest to use!

Pioneer Bios



Just like the Wikimedia Foundation that created Wikipedia, OurMed will mostly be driven by volunteers. In addition to the occasional business or technology consultant, the profile for OurMed’s volunteer community will be talented professionals that want to make bring forward the OurMed mission to the end-goal of having a global impact.

To incentivize our founders, we have created the Founding Framer Program. To date, the following folks are eligible and working toward a goal to volunteer more than 100 Communty hours:


Vincent Navarro  (OurMed Tech Committee Chair)

212 444 2633

vnavarro”at”pipeline.com

Research Specialist @ Weill Medical College

Online Database Manager @ Scientists Without Borders


I have done basic science research for over 15 years in the area of prostate cancer. During this time I have had the privilege of working on the development of monoclonal antibodies targeting prostate cancer from concept through clinical trials. This has afforded me a keen insight into development process of therapeutic drugs. In addition, a strong interest in computers has seen me pursue a graduate degree in computer science in addition to my undergraduate in Chemistry. As a result I have designed and developed a clinical trials management system in my laboratory. I am currently the Online Database Manager for Scientists Without Borders. There, I am responsible for the administration of the database and development of the web portal.


Eileen McGinn, MPH (OurMed Content Committee)

MPH/Certificate in Aging,  qedeileen”at”aol.com

Worked in international health and development for 25 years, including several years living in Africa and Asia. Currently PT Research Manager for Nathan Kline Institute, working on the interrelation of poverty and mental health and health equity for persons with disabilities. PT tutor for immigrant high school students at Manhattan Comprehensive Night and Day High School. Volunteer work for many different agencies, including health, disability, immigrant, women's, peace, international. Have written for various websites on health issues. Especially interested in translating technical work into comprehensible language, community-based participatory research and the Capabilities Framework for development and justice.


Geoff Hayden, MD (OurMed Content Committee)

Geoffhayden”at”gmail.com 615.479.6499 (Cell)

I am a practicing Emergency Physician, splitting time between NYC and South Carolina. I have been in academic practice since 2005 (Residency at Vanderbilt University, Fellowship at University of Pennsylvania), with an emphasis on resident education and emergency ultrasound. My interest in OurMed.org stems from a dissatisfaction regarding the abysmal state of preventive care and a general lack of health care coverage in the U.S. I see OurMed.org as an essential resource to connect patients to health information and health providers.

I imagine my role with OurMed.org in terms of producing content, recruiting other physicians for ongoing contribution, and assisting Greg with the development of a user-friendly, comprehensive clearinghouse of useful health care information.

Geoffrey E. Hayden, MD, FAAEM, FACEP

Adjunct Clinical Professor Vanderbilt University Medical Center Department of Emergency Medicine Nashville, TN Piedmont Medical Center Emergency Department Attending

222 South Herlong Ave Rock Hill, SC 29732

Vanessa Moore (OurMed Recruitment Committee Chair)

MVanellen”at”ourmed.org 914-665-4534 (home) 914-751-9758 (cell)

Vanessa Moore is a native New Yorker who brings 7 years recruiting experience to the Ourmed recruitment effort. She would like to leverage her experience recruiting volunteers to Ourmed, a forward thinking and progressive approach to disseminating unbiased healthcare information to the public. She has worked in both corporate and nonprofit settings including a consulting engagement for the Department of Education and most recently at the Westchester Independent Living Center, an advocacy group for people with disabilities. She studied Social Sciences at the Lincoln Center campus of Fordham University.

Stephen Press, DC, PhD (OurMed Content Committee Chair)

A practicing Chiropractic physician (33 years). Was chief physician for the "Unified Team" (former USSR) at the XVIth Winter Olympic Games in Albertville, France in 1992. Founded the World Governing body for sports Chiropractic known as "FICS", for Fédération Internationale de Chiropratique du Sport, now headquartered in Lausanne, Switzerland at the Maison Internationale du Sports, and administered in Toronto, at the World Federation of Chropractic offices. I served on the Medical commission of two IOC recognized World Sports Governing bodies; 1st as Chairman for the Fed. Int'l de Roller Sports, and then as Vice-Chairman for FIDE (Chess). Founded the website IAOCO.org, and co-founded WikiChiro.org. Today, I serve as advisor for the International Sports Chiropractic Association, which is the liaison body interacting with the World Olympian's Association. I speak, English, French, Russian and Spanish, play the cello and clarinet, compete in pool, and follow biblical archeology and do artist blacksmithing, making swords and medieval armor as hobbies.

John Volpe (OurMed Tech Committee Content Liaison)

johnvolpe1”at”yahoo.com 516-221-4692

My background is primarily in accounting, finance and business operations, primarily in the financial services industry. While I'm not a technical professional, I have participated in and managed numerous technical and business projects, primarily involving financial systems. I also worked as a management consultant for a Virginia based company that I did consulting work for the federal and state governments. I am currently retired. In addition to playing tennis and engaging in other physical activities, I volunteer my time and an Account Director with an NYC based organization that provides service grants in the form of a volunteer project team that manages strategy, financial, marketing and development projects for non-profits. My interest in this project is really from the perspective of someone who is a consumer of medical information and is interested in the efficient delivery of medical information to the public.

Richard Knipel, OurMed Content Committee

I have been a volunteer for Wikipedia and other free culture efforts for several years, with a special focus on outreach initiatives to New York area cultural institutions, such as Wikipedia classes at the New York Public Library, museum photography with Wikipedia Loves Art, and urban photography with the TOPP nonprofit with Wikis Take Manhattan. I have served as President of the nonprofit Wikimedia New York City since September 2008. I hope to bring these experiences in helping to build Ourmed into an innovative and rich online healthcare community along the wiki model.

Elise Passikoff, OurMed Tech Committee

Elise Passikoff, OurMed Tech Committee
From a background in print and educational publishing, I entered the online world as an editor and technical writer at a start-up software company. There I learned the tools of the trade and gained valuable experience in writing, editing and posting online content. In 2000, I moved to the New York Academy of Sciences [www.nyas.org], where, first as online producer and then as web senior project manager I led the development, implementation, and maintenance of complex online projects, including the ground-breaking website Scientists Without Borders [[[scientistswithoutborders.org|scientistswithoutborders.org]]].

Diane Joiner, OurMed Content Committee

Diane, need your bio and committee form!

Greg Miller, OurMed Executive Director

at OurMed greg.miller@ourmed.org 212-740-1850

Have 17 years of Corporate Finance and Marketing experience for Fortune 500 companies including nine years abroad (Germany, England and Japan). I've been here in New York since 1996, always passionate about developing new brands, ideas and products. Did Marketing Analysis for ANA, a Japanese Airline, Finance for Cablevision's HD Satellite business and Revlon. Since 2005, I've been inspired by non-profits, created New York's Dance Parade and have worked on OurMed since the Fall of 2008. I'm inspired by the transparent, non-profit approach to the democratization of healthcare. OurMed has a small office at Columbia Medical Center's Audubon Business and Technology Building--Come by and visit us!

3960 Broadway (Entrance on 166th Street) Suite 301 o (212) 740-1850 c (917) 627-7155 greg.miller@ourmed.org

Watch the OurMed Presentation: http://docs.google.com/present/edit?id=0Ad4ohgeyfGzCZGRoNnFuNW1fMzljMmh2OW5jdw&hl=en

OurMed's Board of Directors:

Florence Devouard

OurMed Board Member fdevouard@anthere.org

Florence Devouard served as one of the elected representatives to the Wikimedia Foundation Board starting June 2004, and was the Chair of the WMF Board from October 21, 2006 until July 16th, 2008. Florence was born in Versailles (France). She grew up in Grenoble, and has been living since then in several French cities, as well as Antwerpen in Belgium and Tempe in Arizona. She holds two masters, one in Agricultural Sciences (a 5-year degree in agronomical engineering (Diplome d'Ingénieur Grande Ecole) from ENSAIA and the other a postgraduate degree (DEA) in Genetics and Biotechnologies from INPL.She has been working in public research, first in flower plant genetic improvement, and second in microbiology to study the feasability of polluted soil bioremediation. She was employed until 2005 in a French company, to conceive decision-making tools in sustainable agriculture. She is now a consultant in Internet Communication Strategy. She joined the Wikipedia adventure in February 2002 and is known as a contributor under the pseudonym Anthere. Florence is 39, and lives in Clermont Ferrand with her husband Bertrand and her three children, Anne-Gaëlle aged nine, William eleven and Thomas two. On May 16 2008, Florence was made a knight in the French National Order of Merit, proposed by the Ministry of Foreign Affairs as "chair of an international foundation"

Alex Fotopoulos

OurMed Board Secretary alex@broadwaylawoffices.com

Alex Fotopoulos has served on the board since October 2008. He attended Rutgers College in New Brunswick, NJ and then received his Juris Doctor degree from Southwestern University in Los Angeles, California in 1990. He has experience as a litigation attorney and as an entrepreneur. He has held held positions as an attorney and as part of the management team of such high technology companies including AT&T Wireless, T-mobile, Nextel, Metricom, GTE Internetworking as well as small local start-up ventures. He is a licensed Attorney in New York, New Jersey and California.

Stan Kachnowski

OurMed Board Chair swk16@hitlab.org

Stan Kachnowski is one of America’s distinguished scholars in health-care information policy and management having taught e-health and health-care e-business for nearly 20 years. He has authored over 100 scholarly papers and presentations for the world’s leading journals and societies in health-care technology management, informatics and e-governance. In 2003 he was elected as a Fellow in the Royal Society of Medicine in the United Kingdom for his research with the National Health Service in using handhelds to track patient data. In 1996 he was elected to the US-based College of Healthcare Information Management Executives. Stan is currently a visiting professor at the Indian Institute of Technology, New Delhi, India.

Oleta McHenry

OurMed Board Treasurer Newsgirl_fl@hotmail.com

Oleta McHenry was born in Washington D.C. and grew up in Ohio. After graduating high school, she briefly attended Wright State University in Dayton, studying Political Science. She transferred to St. Petersburg College in St. Petersburg, FL and received her A.A. degree in Liberal Arts. Oleta earned her B.S. in Accounting from Florida Metropolitan University in Clearwater, FL in 2006.

Oleta worked for the Pulitzer prize winning newspaper, St. Petersburg Times as a circulation manager. After receiving her degree in accounting, she worked briefly in the insurance industry before joining the Wikimedia Foundation as the fulltime accountant of record. While at the Wikimedia Foundation, Oleta helped put in place accounting practices that would help the company in growth and development. She did not follow Wikimedia to San Francisco and now works for a large medical supply company managing the General Ledger for several regions within the United States. Oleta resides in St. Petersburg, FL and works as an accountant.

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